Resources for Youth & Families
Check out this collection of links. If you know of some good websites that
are not listed here, send us an email to the helpdesk
and we'll add them. Thanks!
Local & Regional
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Children's Medical Services
The Children's Medical Services (CMS) program provides children with special
health care needs with a family centered, managed system of care. Children
with special health care needs are those children under age 21 whose serious
or chronic physical, developmental, behavioral or emotional conditions require
extensive preventive and maintenance care beyond that required by typically
healthy children.
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Catholic Charities Bureau, Inc. Jacksonville Florida
The mission of Catholic Charities is to provide services to anyone in need,
regardless of race or religion; to advocate justice, human dignity and quality
of life; and to call all people to join in these efforts; thereby reflecting
the compassion of God in Christ.
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Counseling Support Jewish
Family and Community Services
Jewish Family & Community Services takes great pride in providing services
to everyone throughout the North Florida community, Jewish and non-Jewish
alike. Through nearly 100 years, Jewish Family & Community Services
has remained true to the mission of helping people help themselves.
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Statewide
- Children's Medical Services
The Children's Medical Services (CMS) program provides children with special
health care needs with a family centered, managed system of care. Children
with special health care needs are those children under age 21 whose serious
or chronic physical, developmental, behavioral or emotional conditions require
extensive preventive and maintenance care beyond that required by typically
healthy children.
- Family Café
The Family Café, Inc., a non-profit statewide organization, was created
to fulfill an unmet need in Florida: the need for information. The Family
Cafe is proud to offer educational opportunities and information on meaningful
topics for individuals with disabilities and their families in a family-centered
environment. We hope this information will help individuals with disabilities
make sensible and educated decisions regarding the services they receive.
- Florida Health and Transition Services (FloridaHATS)
This site includes a Health Services Directory which young adults can use to find health care providers in their area and a health care transition Tool Box that is filled with helpful documents and links to local, state and national resources.
- Florida Institute for
Family Involvement
FIFI is a non-profit organization with a 501C3 status for the purpose of enhancing,
facilitating, and supporting family and consumer involvement in the development
of responsive, family centered, and community based systems of care.
- Family Voices Florida
Family Voices is a national, grassroots clearinghouse for photo of mother
and daughterinformation and education concerning the health care of children
with special health needs.
- Family Network
on Disabilities of Florida, Inc.
FNDF is a statewide network of families and individuals who may be at-risk,
have disabilities, or have special needs and their families, professionals,
and concerned citizens. Their mission is to ensure that Floridians have full
access to family-driven support, education, information, resources, and advocacy.
- Florida Developmental Disabilities
Council
We encourage and advocate opportunities for persons with developmental disabilities
and their families, to enhance their quality of life within their communities.
We support innovative initiatives that demonstrate new approaches to enhance
the independence, productivity, inclusion and self-determination of individuals
with developmental disabilities in all facets of community life.
- Florida
Developmental Disabilities Council - Transition Training
Transition training designed for youth and families with special needs, commissioned
by the Florida Developmental Disabilities Coucil and produced by the Transition
Initiative at the University of Florida's Institute for Child Health Policy.
- Florida
Division of Vocational Rehabilitation
An employment resource for businesses and people with disabilities. Our mission
is to enable individuals with disabilities to obtain and keep employment.
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National and Worldwide
- Health Care Transitions
at the Institute for Child Health Policy, University of Florida
The mission of the Health Care Transition Initiative at the University of
Florida is to increase awareness of, gain knowledge about, and promote cooperative
efforts to improve the process transitioning from child-centered (pediatric)
to adult oriented health care. Our vision is to improve the transition process
for all adolescents and young adults, although our current efforts focus on
those with disabilities and special health care needs.
- Institute for Community Inclusion
The mission of the Institute for Community Inclusion is to support the rights of children and adults with disabilities to participate in all aspects of the community.
- Paul V. Sherlock
Center on Disabilities
The mission of the Paul V. Sherlock Center on Disabilities is to promote the
community membership of individuals with disabilities in school, work and
society.
- Royal Children's
Hospital Transition Project
Transition of patients to adult health care, information for patients,
parents, and health care profesionals.
- Livestrong
The Lance Armstrong Foundation (LAF) believes that in the battle with cancer,
unity is strength, knowledge is power and attitude is everything. Founded
in 1997 by cancer survivor and champion cyclist, Lance Armstrong, the LAF
provides the practical information and tools people living with cancer need
to live strong. Our mission is to inspire and empower people with cancer to
live strong. We serve our mission through education, advocacy, public health
and research programs.
- Healthy & Ready to Work
We provide information and connections to health and transition expertise
nationwide – from those in the know, doing the work and living it!
- DHMC
STAR Program
Steps Toward Adult Responsibility - The STAR Program promotes healthy psychological
and social development for adolescents with a chronic physical health condition.
- Dream Team
The DREAM Team web site provides resources for young people with conditions
like arthritis, their families and the health professionals who look after
them.
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Helpful Documents & Resources
Below are additinal publications and resources that we suggest you download
and look through. These downloads are in Adobe PDF format, and will require
Adobe's free Acrobat Reader. Click the link below to download the free reader.
Health Care Transition Workbooks
A Product of the Health Care Transition Initiative, Institute for Child Health
Policy at the University of Florida
- Health Care Transition Workbook for Ages 12-14 as PDF
English |
Spanish
- Health Care Transition Workbook for Ages 15-17 as PDF
English |
Spanish
- Health Care Transition Workbook for Ages 18 & Up as PDF
English |
Spanish
Envisioning My Future: A Young Person's Guide to Health Care Transition
A Product of the Health Care Transition Initiative, Institute for Child Health
Policy at the University of Florida
|
Orientation