Health Care Providers - Resources
In this section you will find resources to support your professional interactions
with youth and young adults with disabilities.
Scholarly Articles
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Health Care
Transition: Destinations Unknown
Published in PEDIATRICS Vol. 110 No. 6 December 2002, pp. 1307-1314
Online
"Health Care Transition: Destinations Unknown"
Transition from child-centered to adult health-care systems for adolescents
with chronic conditions.
A position paper of the Society for Adolescent Medicine.
J Adolesc Health. 1993 Nov;14(7):570-6. PMID: 8312295 [PubMed - indexed for
MEDLINE]
PubMed
citation Health
Care Transition: Youth, Family, and Provider Perspectives
Online version: http://pediatrics.aappublications.org/cgi/content/full/115/1/112
ABSTRACT. Objective. This study examined the process of health care transition
(HCT) posing the following questions: What are the transition experiences
of youths and young adults with disabilities and special health care needs,
family members, and health care providers? What are promising practices that
facilitate successful HCT? What are obstacles that inhibit HCT? Audit
of Rheumatology services for adolescents and young adults in the UK
ABSTRACT: With the improved survival of children with disabilities and increasing
prevalence of chronic illness in childhood, the transitional management of
these young people is viewed as an area of increasing importance and interest.
However, adolescent health services in the UK are still at a rudimentary stage
of development, with a recent national survey of health authorities reporting
that only 9.8% had purchaser specifications for adolescent facilities. Furthermore,
two recent studies of physically disabled young people reported that the quality
of medical care declines after transfer to adult services. Perceived
Health and Self-Efficacy Among Adults with Cerebral Palsy
ABSTRACT: Perceptions of self-efficacy and health attitudes among people with
cerebral palsy who are living in the community were explored. Their self-efficacy
ratings were related to amount of mechanical and personal assistance needed
and perceived financial resources. When compared with two other groups, people
attending a health fair and people from a statewide disability advocacy group,
participants with cerebral palsy scored lower on The Self-Rated Abilities
for Health Practices Scale, particularly in the areas of exercise and nutrition.
Participants also provided information about what prevents them from promoting
their health. Suggestions for rehabilitation counseling practice are included.
Transition
Programs in Cystic Fibrosis Centers: Perceptions of Pediatric and Adult Program
Directors
Summary. There is a growing population of adults with cystic fibrosis (CF)
and a need for development of adult CF programs. Recommendations for transfer
of patients to an adult program include a transition program. Our goal was
to assess the current status of transition programs in US CF centers. In
addition, we sought to determine the problems related to the transfer of
patients to adult programs as perceived by CF center program directors.
Transition
Programs in Cystic Fibrosis Centers: Perceptions of Team Members
ABSTRACT: We previously surveyed cystic fibrosis (CF) center directors and
adult patients with CF to assess their perceptions regarding transition
from a pediatric to an adult setting. An important finding in those studies
was a lack of standard programs for transfer of young adults with CF from
pediatric to adult care settings. Patients with CF typically receive care
from clinics utilizing a multidisciplinary approach, suggesting that every
member of the CF team can impact the transition process. Our purpose in
this study was to gain an appreciation for various team members’ perspectives
on transition.
Current
methods of transfer of young people with Type 1 diabetes to adult services
Excerpt: We read with interest the recent paper [1] on transfer of people
with diabetes from paediatric (PDS) to adult (ADS) services. We have undertaken
a similar study in a single centre, to evaluate the outcome of transfer and
to identify factors associated with success or failure of the process. Individuals
transferred aged 17 years from an evening paediatric clinic staffed by paediatric
and adult physicians to an adult clinic within the same teaching hospital
or to one of two neighbouring district general hospitals (DGHs), or at the
subject’s request, to their GP. Psychosocial
Factors and Medication Adherence in HIV-Positive Youth
ABSTRACT: The purpose of this study was to test variables consistently identified
in the adult HIV literature as predictors of adherence (self-efficacy, social
support, and psychological distress) in a sample of 24 HIV-positive youth
(ages 16–24). Self-efficacy and psychological distress were significantly
correlated with adherence but social support was not. Social support specific
to taking medications was correlated with self-efficacy. In regression analysis,
both self-efficacy and psychological distress were independently related to
adherence and together accounted for 47% of the variance. Results suggest
the potential of mental health interventions that boost self-efficacy and
reduce psychological distress but require replication with larger samples.
Creating
Healthy Futures: An Innovative Nurse-Managed Transition Clinic for Adolescents
and Young Adults with Special Health Care Needs
The Creating Healthy Futures (CHF) Clinic is an innovative, nurse managed
service model that provides comprehensive transition services to youth and
young adults with special health care needs. Unlike other transition service
models reported in the literature that are medically based, comprehensive
transition services were coordinated by a family nurse practitioner who worked
in close collaboration with an interagency team of pediatric and adult service
providers. The CHF service model was originally developed for use in educational
settings but was adapted for use in health care settings. The components of
the service model are described in detail as a model for replication in other
health care settings. Health
care delivery: Perspectives of young people with chronic illness and their
parents
Objective: To identify and compare perceptions of health care service delivery
held by young people with chronic illness and their parents.
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Helpful Documents & Resources
Transition Planning
Other Helpful Tools
HEADS
A useful clinical tool to screen for adolescent generic health and psychosocial
issues in clinical consultations
Trigger Questions
A list of useful questions to use in clinical consultations with young people
with chronic illnesses
Health Care Transition Workbooks
A Product of the Health Care Transition Initiative, Institute for Child Health
Policy at the University of Florida
- Health Care Transition Workbook for Ages 12-14 as PDF
English |
Spanish
- Health Care Transition Workbook for Ages 15-17 as PDF
English |
Spanish
- Health Care Transition Workbook for Ages 18 & Up as PDF
English |
Spanish
Envisioning My Future: A Young Person's Guide to Health Care Transition
A Product of the Health Care Transition Initiative, Institute for Child Health
Policy at the University of Florida
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Online Training for Teens, Young Adults, Parents and Professionals
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Weblinks
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Children's Medical Services
The Children's Medical Services (CMS) program provides children with special
health care needs with a family centered, managed system of care. Children
with special health care needs are those children under age 21 whose serious
or chronic physical, developmental, behavioral or emotional conditions require
extensive preventive and maintenance care beyond that required by typically
healthy children.
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Transition
Information and Resources, Division of Specialized care for Children, University
of Illinois at Chicago Health Sciences Center
Transition resources including information sheets for families, worksheets
fro parents and youth, teaching sheets, timelines, health care checklists
and other resources that can help youth and their families in the transition
to adulthood.
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Paul V. Sherlock
Center on Disabilities
The mission of the Paul V. Sherlock Center on Disabilities is to promote
the community membership of individuals with disabilities in school, work
and society.
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Royal Children's
Hospital Transition Project
Transition of patients to adult health care, information for patients,
parents, and health care professionals.
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Welcome
to Bloorview MacMillan Children's Centre
Bloorview Kids Rehab is an academic health science centre affiliated with
the University of Toronto.
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Orientation