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Health Care Providers - Resources

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In this section you will find resources to support your professional interactions with youth and young adults with disabilities.

 

 

Scholarly Articles

  • Health Care Transition: Destinations Unknown
    Published in PEDIATRICS Vol. 110 No. 6 December 2002, pp. 1307-1314
    Online "Health Care Transition: Destinations Unknown"

  • Transition from child-centered to adult health-care systems for adolescents with chronic conditions.
    A position paper of the Society for Adolescent Medicine.
    J Adolesc Health. 1993 Nov;14(7):570-6. PMID: 8312295 [PubMed - indexed for MEDLINE]
    PubMed citation

  • Health Care Transition: Youth, Family, and Provider Perspectives
    Online version: http://pediatrics.aappublications.org/cgi/content/full/115/1/112
    ABSTRACT. Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT?

  • Audit of Rheumatology services for adolescents and young adults in the UK
    ABSTRACT: With the improved survival of children with disabilities and increasing prevalence of chronic illness in childhood, the transitional management of these young people is viewed as an area of increasing importance and interest. However, adolescent health services in the UK are still at a rudimentary stage of development, with a recent national survey of health authorities reporting that only 9.8% had purchaser specifications for adolescent facilities. Furthermore, two recent studies of physically disabled young people reported that the quality of medical care declines after transfer to adult services.

  • Perceived Health and Self-Efficacy Among Adults with Cerebral Palsy
    ABSTRACT: Perceptions of self-efficacy and health attitudes among people with cerebral palsy who are living in the community were explored. Their self-efficacy ratings were related to amount of mechanical and personal assistance needed and perceived financial resources. When compared with two other groups, people attending a health fair and people from a statewide disability advocacy group, participants with cerebral palsy scored lower on The Self-Rated Abilities for Health Practices Scale, particularly in the areas of exercise and nutrition. Participants also provided information about what prevents them from promoting their health. Suggestions for rehabilitation counseling practice are included.

  • Transition Programs in Cystic Fibrosis Centers: Perceptions of Pediatric and Adult Program Directors
    Summary. There is a growing population of adults with cystic fibrosis (CF) and a need for development of adult CF programs. Recommendations for transfer of patients to an adult program include a transition program. Our goal was to assess the current status of transition programs in US CF centers. In addition, we sought to determine the problems related to the transfer of patients to adult programs as perceived by CF center program directors.

  • Transition Programs in Cystic Fibrosis Centers: Perceptions of Team Members
    ABSTRACT: We previously surveyed cystic fibrosis (CF) center directors and adult patients with CF to assess their perceptions regarding transition from a pediatric to an adult setting. An important finding in those studies was a lack of standard programs for transfer of young adults with CF from pediatric to adult care settings. Patients with CF typically receive care from clinics utilizing a multidisciplinary approach, suggesting that every member of the CF team can impact the transition process. Our purpose in this study was to gain an appreciation for various team members’ perspectives on transition.

  • Current methods of transfer of young people with Type 1 diabetes to adult services
    Excerpt: We read with interest the recent paper [1] on transfer of people with diabetes from paediatric (PDS) to adult (ADS) services. We have undertaken a similar study in a single centre, to evaluate the outcome of transfer and to identify factors associated with success or failure of the process. Individuals transferred aged 17 years from an evening paediatric clinic staffed by paediatric and adult physicians to an adult clinic within the same teaching hospital or to one of two neighbouring district general hospitals (DGHs), or at the subject’s request, to their GP.

  • Psychosocial Factors and Medication Adherence in HIV-Positive Youth
    ABSTRACT: The purpose of this study was to test variables consistently identified in the adult HIV literature as predictors of adherence (self-efficacy, social support, and psychological distress) in a sample of 24 HIV-positive youth (ages 16–24). Self-efficacy and psychological distress were significantly correlated with adherence but social support was not. Social support specific to taking medications was correlated with self-efficacy. In regression analysis, both self-efficacy and psychological distress were independently related to adherence and together accounted for 47% of the variance. Results suggest the potential of mental health interventions that boost self-efficacy and reduce psychological distress but require replication with larger samples.

  • Creating Healthy Futures: An Innovative Nurse-Managed Transition Clinic for Adolescents and Young Adults with Special Health Care Needs
    The Creating Healthy Futures (CHF) Clinic is an innovative, nurse managed service model that provides comprehensive transition services to youth and young adults with special health care needs. Unlike other transition service models reported in the literature that are medically based, comprehensive transition services were coordinated by a family nurse practitioner who worked in close collaboration with an interagency team of pediatric and adult service providers. The CHF service model was originally developed for use in educational settings but was adapted for use in health care settings. The components of the service model are described in detail as a model for replication in other health care settings.

  • Health care delivery: Perspectives of young people with chronic illness and their parents
    Objective: To identify and compare perceptions of health care service delivery held by young people with chronic illness and their parents.

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Helpful Documents & Resources

Transition Planning

Other Helpful Tools

  • HEADS
    A useful clinical tool to screen for adolescent generic health and psychosocial issues in clinical consultations

  • Trigger Questions
    A list of useful questions to use in clinical consultations with young people with chronic illnesses

Health Care Transition Workbooks

A Product of the Health Care Transition Initiative, Institute for Child Health Policy at the University of Florida

Envisioning My Future: A Young Person's Guide to Health Care Transition

A Product of the Health Care Transition Initiative, Institute for Child Health Policy at the University of Florida

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Online Training for Teens, Young Adults, Parents and Professionals

  • Health Care Transition Training Program for Families and Youth
    This web-based training program is designed to help young people with disabilities and chronic health conditions and their families with the process of planning for and successfully completing a transition to adult oriented medical services. Produced by the Institute for Child Health Policy at the University of Florida and the Florida Developmental Disabilities Council.

  • Health Care Transition Training Program for Professionals
    This online training curriculum provides information about how professionals can help prepare youth with chronic health conditions and disabilities for their eventual graduation from pediatrics and transfer to adult health care. Up to 4 free CME credits are available to pediatricians and other care providers in Florida. See: Brochure or go to Course Web Site and look for "Health Care Transition Training Program".
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